I have never heard of this - oh my...I am glad you finally got a diagnosis and access to treatment and that you also have the support of your family as you navigate all this - for me it took at least 8-9 doctor visits before I got the correct diagnosis of fibromyalgia and put on the right meds - then last year I got frozen shoulder - so pain upon pain - but thank goodness I got the best PT and he worked his magic over the course of 7 months to bring mobility back to my shoulder - yes that long but now am much better 😊🙏